Professor Laurent Servais
Professor of Paediatric Neuromuscular Diseases at the University of Oxford and the University of Liège, I am a clinician-researcher who has been involved in the management of rare and severe childhood diseases for 20 years. I am responsible for the pilot programme for newborn screening for spinal muscular atrophy in Belgium (passed into law in March 2021) and the pilot programme in Oxford, UK.
Tamara Dangouloff
My on going PhD in health economy at the University of Liege covers the medico-economic analysis of newborn screening for spinal muscular atrophy. Initially trained as a paediatric nurse, then as head of nursing, I have been working for 15 years with sick children.
I am the project leader for newborn screening for spinal muscular atrophy in Belgium.
Florine Thunus
I am a clinical psychologist specialised in clinical neuropsychology at the University of Liege. I am particularly interested in neurological diseases in childhood and in supporting families who receive these difficult diagnoses.
Meeting with several young families in Belgium has give me the opportunity to work with them to validate various explanatory and informative brochures relating to spinal muscular atrophy.